TBO.com - TBO is Tampa Bay Online

Pancreatic Cancer A Research Orphan

ADVERTISEMENT

By MATTHEW DALLEK Special to The Washington Post

The Tampa Tribune

Published: August 11, 2008

It's a dreaded disease. The fourth-highest cause of cancer deaths in the United States, it's usually portrayed as an unstoppable, incurable killer. It has struck some high-profile figures: Hollywood actor Patrick Swayze has been diagnosed with it. Opera star Luciano Pavarotti and former Ronald Reagan aide Michael Deaver died of it. So, too, on July 25, did Randy Pausch, the former Carnegie Mellon University computer science professor whose "last lecture" before a university audience became a YouTube sensation and a best-selling book.

Last March, Pausch testified before a congressional subcommittee about his struggle with pancreatic cancer. Holding up a picture of his soon-to-be-widowed wife, he pleaded for an increase in the paltry level of federal funding for research into this lethal disease. His testimony was gripping, and his battle generated a raft of news articles and media reports. And yet somehow, pancreatic cancer remains a private catastrophe - and an orphan of American medical research.

I know firsthand how devastating a diagnosis of pancreatic cancer can be. In April 2007, I started experiencing stomach pain. I saw a gastroenterologist, who ordered a CT scan, after which he sent me to the emergency room of a Washington, D.C., hospital. There, on April 6, a surgeon told me that the scan had revealed that I had appendicitis - and a large mass on my pancreas. At those words, my world turned upside down.

I didn't know much about pancreatic cancer, but I knew enough: If I had adenocarcinoma, far and away the most common kind of pancreatic cancer, I would probably be dead within six months, at the age of 38. The five-year survival rate is 5 percent. Just about everybody who has that form of the disease dies quickly.

It wasn't until April 10 that I was fortunate enough to get an appointment with Dr. John Cameron of Johns Hopkins University, the most experienced pancreatic cancer surgeon in the world. He looked at my films and asked me whether I'd recently lost a lot of weight. I told him no. And he told me that I was "going to live a long life."

For the first time since my diagnosis, my family, my girlfriend and I were able to breathe. I had a rare form of pancreatic cancer, called an islet-cell tumor, that's usually curable when caught early. It's the same kind of tumor that Steve Jobs, the chief executive officer of Apple, had in 2004.

My tumor, although the size of a large orange, was encapsulated, and Cameron was able to remove it all. But Jobs and I are among the fortunate few.

I was in the hospital for six nights after my surgery, and that's when I realized just how fortunate I had been. One of my neighbors down the hall was a man in his 50s, also recovering from pancreatic surgery. He routinely lapped me when I walked the corridors. I was so ill I could barely walk, yet every time he passed me, this man told me to keep going.

I later learned that he had adenocarcinoma and that his doctors hadn't been able to remove all of the cancer. He was a nice man, incredibly brave. So although I didn't know him, I am inspired to tell my story in the hopes that in the coming years the investment in pancreatic cancer research will be worthy of his courage and his humanity.

The National Cancer Institute spent nearly $600 million on breast cancer research in 2006, compared with a meager $74 million for pancreatic cancer research. In the past three years, it has provided only five grants to younger scientists who want to investigate this deadly form of cancer.

I hope to do my own small part to change all that. In September, I'll be going on a bike tour with a few friends through the Civil War battlefields of Maryland to raise money for pancreatic cancer research at Johns Hopkins.

But so much more needs to be done. Private donations will never be weapon enough to defeat this foe. The big guns will have to come from elsewhere. At a minimum, Washington lawmakers should take a first step in launching the war against pancreatic cancer and, as Randy Pausch asked, double the funding to fight this terrible disease.

Matthew Dallek writes a monthly column on history and politics for Politico and will teach in Washington this fall.

Share this:

Loading Comments...

Email Print

ADVERTISEMENT