SEFFNER - Monica McIntyre likes to call daughters Heaven and Trinity "my little miracles."
Both have defied all medical odds. Heaven is now 51/2. She has survived 31/2 years longer than doctors predicted. Trinity, at age 4, has lived twice as long as expected.
Both were born with a rare inherited disorder called Leigh's disease that causes the central nervous system to rapidly degenerate between ages 3 months and 2 years. Children rarely live longer than two or three years.
When fellow Seffner resident Sheri Brown heard about Heaven and Trinity last year, she launched a fundraiser to help finance renovations to accommodate the girls' needs. That included removing moldy carpeting and replacing it with tile, remodeling the girls' bathroom, removing a wall to create one large bedroom and replacing the home's roof.
Brown said the family will continue to need the community's help, including donations of medical equipment, appliances, service help, pre-cooked meals, diapers, other supplies and money. Brown has set up a Circle of Faith account for Trinity and Heaven at Mercantile Bank, 1018 W. Lumsden Road, Brandon, FL 33511.
The account manager is Kathy Vircik. She can be reached at (813) 643-6700.
Checks can be sent to Vircik's attention with "Circle of Faith for Trinity and Heaven" written on the memo line.
D'Ann Lawrence White
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